Workplace advocacy, self-care, and community connection were the focus of the April Lipedema Patient Roundtable, featuring special guest Susan O’Hara, founder of the American Lipedema Association (ALA). This nonprofit is led by individuals living with lipedema, along with medical professionals, researchers, and advocates, all united to empower patients and raise awareness and understanding of the condition in the U.S.
O’Hara shared how the ALA is making meaningful strides—from petitioning the CDC to recognize lipedema in U.S. ICD-10-CM codes to launching an email campaign urging all 182 accredited medical schools to include lipedema in core education. Two of our Roundtable’s own, Jenny Beaujean and Cara Cruz, serve on the ALA board.
The Roundtable also covered highlights from the recent Fat Disorders Resource Society (FDRS) Conference, including insights on the impact of heat on lipedema, the benefits of compression, and aqua therapy. The Lipedema Foundation’s provider directory was spotlighted as a great resource to find clinicians who treat lipedema, and moderator Brenda Viola reminded attendees that Lympha Press reps nationwide are happy to help connect patients with experienced providers.
Attendees joined the conversation from the chat, including one participant who asked: “How would you describe what lipedema is?” The panelists took turns responding, each offering their unique perspective.
Lipedema hurts, but the Roundtable exists to help ease some of the emotional burden by offering knowledge, encouragement, and connection. The evening closed with this question: “How do you self-soothe?” Answers ranged from Angelique Charles’ singing worship music to Linda Anne Kahn’s special aromatherapy blend, leaving everyone with a homework assignment: Take care of yourself. You’re worth it.
Thanks to the panelists for making the hour vibrant, informative, and uplifting:
- Jenny Beaujean (@Jenny_beaujean)
- Angelique Charles (@TheLippyButterfly)
- Cara Cruz (@PaleGingerPear)
- Linda Anne Kahn (@lindaannekahn)
- Susan O’Hara (@legs_likemine)
- Brenda Viola (@BrendaViola_ViciCommunications)
Susan’s resources:
- Aqua Therapy for Lipedema and Lymphedema
- Workplace Rights and Protections: A Guide for Employees with Lipedema
Lympha Press is proud to support the lipedema community through these monthly Roundtables and offers effective, easy-to-use pneumatic compression therapy that fits every body. Learn more about our size-inclusive options at lymphapress.com.
This Roundtable was originally recorded live on April 16, 2025, and has been edited for time. The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of Lympha Press.